The network is a member of the European
Genetic Alliances Network and, as such, is represented on
the European and global level.
The network looks to establish a partnership
and / or liaise with other organizations on the European level
such as EDMA, EFPIA , EPPOSI, ESHG, and Orphanet. On the International
level, the network looks to establish a relationship with
IFHGS, Biovision, and WAOPTGCC.